Improving Lives Touched by Hypoparathyroidism
The HypoPARAthyroidism Association is a non-profit patient organization working to improve lives touched by hypoparathyroidism, a rare medical disorder in which the parathyroid glands fail to produce sufficient amounts of the parathyroid hormone, a principal regulator of the body's mineral homeostasis. We are directed by an unpaid volunteer Board of Directors and are overseen by a Medical Advisory Board.
Hyatt Regency Jacksonville Riverfront Don’t forget to register for the 10th International Conference on Hypoparathyroidism
We will be celebrating World Hypoparathyroidism Awareness Day on Wednesday night June 1, 2016.There will be a reception in the Hypopara Hospitality Suite overlooking the beautiful St. Johns River in downtown Jacksonville with live music on the outside patio with refreshments.
The 3rd Quarter 2015 issue of the HypoPARA-Post is now available online - FREE to all for a limited time.
Shire is holding a series of FREE 1-1/2 hr meetings with either lunch or dinner during October and November about Natpara. They are holding meetings in Georgia, New Jersey, Massachusetts, New York, Washington, Rhode Island, South Carolina, North Carolina, Alabama, California, Connecticut, and Ohio. This a fantastic way to get your questions about Natpara answered. For more information and to register for these informative meetings please go to:
The American Association of Clinical Endocrinologists (AACE) the publisher of Endocrine Practice has generously allowed us to post the paper "Understanding the Burden of Illness Associated with Hypoparathyroidism Reported Among Patients in the PARADOX Study" on our site.
They are asking our members to print only one copy for their personal use (eg to help educate their doctor). This study is one many of our members participated in to help the medical community better understand what it really means to have hypoparathyroidism. To view the paper for free, you must log in to our site. Here’s the link: https://www.hypopara.org/webinars/paradox_results.html
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