The Association has always advocated participation in patient studies and other investigative medical initiatives. Medical research and patient participation is necessary if medical science is to be advanced, and patient’s quality of life improved.
There are several clinical trials taking place on hypoparathyroidism at this time; too many to list here so we recommend you check out the ClinicalTrials.gov website or CenterWatch (see information below) for the complete list of current and upcoming research protocols.
We were asked by some of our Medical Advisors to post info on their resesarch protocols for your consideration and they are listed below.
If you or someone you know is suffering from hypoparathyroidism, the PARALLAX Study is recruiting.
The purpose of the PARALLAX Study is to measure the safety and tolerability of an injectable study drug and its effects on calcium levels in the blood and the amount of calcium passed in the urine, in adults with hypoparathyroidism, when given once a day versus twice a day. The long-term goal of this continuing research is to improve calcium control and potentially to reduce patients' daily doses and frequency of calcium and vitamin D supplements. Interested individuals will be evaluated to determine eligibility. Participants may also be reimbursed for travel expenses.
To learn more, visit PARALLAXStudy.com.
The divisions of Pediatric Endocrinology and Pediatric Nephrology at Mass General Hospital for Children (MGHfC) are pleased to announce the Pediatric Bone and Mineral Metabolism Disorders (BAMM) Clinic. The BAMM Clinic is a virtual, multidisciplinary clinic that provides care to infants, children and adolescents with conditions such as low bone density, osteoporosis, vitamin D deficiency, rickets and osteomalacia, hypoparathyroidism and other disorders that affect bone health and mineral metabolism.
Our providers work collaboratively with each child’s primary care provider, appropriate specialists and, most importantly, the child and family to ensure the highest quality of care. For older adolescents, our providers can facilitate a seamless transition from pediatric to adult care to ensure ongoing care for their bone health.
To learn more about the BAMM Clinic at MGHfC, including how to schedule an appointment and members of the care team, please visit http://www.massgeneral.org/children/assets/pdf/program-overview-bone-and-mineral-patients.pdf or call the Access and New Appointment Center at 888-644-3248.
Harvard Medical School
CenterWatch Clinical Trials Listing ServiceTM
CenterWatch first launched the Clinical Trials Listing Service in 1994 to assist patients in finding and volunteering for clinical trials. Today, CenterWatch has the largest online listing of actively recruiting clinical trials and is one of the most trusted resources for patients interested in clinical trial participation receiving more than 1.5 million unique patients visitors annually. To search our clinical trial listings and find other patient education resources http://www.centerwatch.com/