Clinical Trials

The Association has always advocated participation in patient studies and other investigative medical initiatives.  Medical research and patient participation is necessary if medical science is to be advanced, and patient’s quality of life improved.

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Columbia Study

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Study to Assess the Blood Concentrations and Actions of Recombinant Human Parathyroid Hormone (rhPTH [1-84]) When Given Once and Twice Daily to Subjects With Hypoparathyroidism (aka Split Dosing Study)

This study is actively recruting patients.

This study is being conducted to characterize the effects of twice daily administration of rhPTH(1-84) on the way the body handles rhPTH(1-84) as well as its actions, and safety and tolerability over the course of 24-36 hours as compared with the current once daily dosing regimen of marketed rhPTH(1-84) (marketed in the United States as Natpara®).

Note: to qualify you cannot currently be participating in another study and cannot be taking any PTH replacement (Forteo or NATPARA) for at least 3 months.  All info can be found at: https://clinicaltrials.gov/ct2/show/NCT02781844?

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The divisions of Pediatric Endocrinology and Pediatric Nephrology at Mass General Hospital for Children (MGHfC) are pleased to announce the Pediatric Bone and Mineral Metabolism Disorders (BAMM) Clinic. The BAMM Clinic is a virtual, multidisciplinary clinic that provides care to infants, children and adolescents with conditions such as low bone density, osteoporosis, vitamin D deficiency, rickets and osteomalacia, hypoparathyroidism and other disorders that affect bone health and mineral metabolism.

Our providers work collaboratively with each child’s primary care provider, appropriate specialists and, most importantly, the child and family to ensure the highest quality of care. For older adolescents, our providers can facilitate a seamless transition from pediatric to adult care to ensure ongoing care for their bone health.

To learn more about the BAMM Clinic at MGHfC, including how to schedule an appointment and members of the care team, please visit http://www.massgeneral.org/children/assets/pdf/program-overview-bone-and-mineral-patients.pdf  or call the Access and New Appointment Center at 888-644-3248. 

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Harvard Medical School

Drs. Michael Mannstadt and Harald Jueppner are conducting a study of causes of familial forms of hypoparathyroidism.  They are looking for participants in which at 2 members of their family are affected by hypoparathyroidism.  For more information, click here.

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 CenterWatch Clinical Trials Listing ServiceTM

CenterWatch first launched the Clinical Trials Listing Service in 1994 to assist patients in finding and volunteering for clinical trials. Today, CenterWatch has the largest online listing of actively recruiting clinical trials and is one of the most trusted resources for patients interested in clinical trial participation receiving more than 1.5 million unique patients visitors annually. To search our clinical trial listings and find other patient education resources http://www.centerwatch.com/ 


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To see if there are any other clinical trials taking place that we may not have heard of - check out the ClinicalTrials.gov website.

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