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MINERALS

 

 

 

Healing Heart Foundation

http://heart.kumu.org/calcium.html

What The Healing Heart Foundation has to say about calcium.

 

 

Medline Plus Logo

http://www.nlm.nih.gov/medlineplus/calcium.htm

http://www.nlm.nih.gov/medlineplus/minerals.html

 

 

CAL-EZ Logo

http://www.cal-ez.com/hypopara

We recognized a need, in this case, it was the need of a rare disease community that wasn't otherwise being met. Moved by advocates from that community we chose to focus our company on providing, not only products, but support and encouragement, because that was what they wanted. As we learned more about the needs of this group, other groups showed themselves to have similar, even overlapping needs. Thanks to some brave decision makers we chose not to focus on what we can't, but what we can do.

 

 

VITAMIN D COUNCIL

http://www.vitamindcouncil.org/

A good place to go to understand Vitamin D3 (cholecalciferol) 

 

 

Got Milk? A new theory on the relationship between calcium and PMS  (Published with permission)

http://escholarship.org/uc/item/4gp7n7rf

Premenstrual Syndrome (PMS) has been described as one of the most common disorders in females, afflicting millions of premenopausal women.  Article was written in 2001

 

 

Factors that inhibit calcium absorption (published with permission)

http://www.paleodiet.com/losspts.txt

We focus on supplementing our diets with calcium, but we don't stop to….

 

 

Magnesium:  A Key to Calcium Absorption

http://www.mgwater.com/calmagab.shtml

The Magnesium Online Library

 

 

Oregon State University

http://lpi.oregonstate.edu/infocenter/minerals/phosphorus/

Phosphorus is an essential mineral that is required by every cell in the body for normal function.   

The Linus Pauling Institute has pages discussing all the body's minerals as well.

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OTHER MEDICAL DISORDERS

 

 

 

New Zeeland’s Addison’s Network

Addison's disease is the result of failure of the adrenal glands to produce their normal steroid hormones. Daily medication to replace these hormones enables a relatively normal lifestyle.

 

 

Celiac Spru Association

CSA is a member-based, 501(c)(3) non-profit support organization dedicated

 

 

Grave’s Disease Education Site by Elaine Moore

Welcome to Elaine Moore's personal web site, which is intended for the support and education of patients with Graves' Disease (GD) and other autoimmune thyroid disorders.

 

 

Diagnosis and Treatment of Graves’ Disease Published with permission)

The diagnosis of Graves' disease is usually easily made.

 

 

Fibromyalgia Network

Fibromyalgia Network takes your pain, fatigue and brain-fog seriously ... and so should you!

 

 

The History of the 22q11.2 Deletion

Well, its history is quite interesting and worth reviewing, but first we need to step back and describe some terminology, so that everyone reading this will begin on the same footing.

 

 

Osteoporosis: The Brittle Bone Disease

The best treatment for osteoporosis is prevention. Once a fracture has occurred as a result of osteoporosis, it is effectively too late to implement the most effective treatment strategies.

 

 

The Effects of Parathyroid Hormone and Alendronate Alone or in Combination in Postmenopausal Osteoporosis  (Published with permission)

Parathyroid hormone increases bone strength primarily by stimulating bone formation, whereas antiresorptive drugs reduce bone resorption. We conducted a randomized, double-blind clinical study of parathyroid hormone and alendronate to test the hypothesis that the concurrent administration of the two agents would increase bone density more than the use of either one alone.

 

 

FDA APPROVES TERIPARATIDE TO TREAT OSTEOPOROSIS  (Published with permission)

FDA has approved teriparatide for the treatment of osteoporosis in postmenopausal women who are at high risk for having a fracture. The drug is also approved to increase bone mass in men with primary or hypogonadal osteoporosis who are at high risk for fracture.

 

 

Dietary Calcium Protects Bones Better (Published with permission)

ST. LOUIS - Most women know that calcium is critical in preventing osteoporosis, the disease of progressive bone loss and fractures that affects millions of Americans.

 

 

Familial Idiopathic Basal Ganglia Calcification

Disease characteristics.  Familial idiopathic basal ganglia calcification (FIBGC) is a neurodegenerative disorder with characteristic calcium deposits in the basal ganglia and other brain areas visualized on neuroimaging.

 

 

Attention Deficit Disorder Resources

The website of Attention Deficit Disorder Resources has over 150 articles written by national ADHD authorities as well as adults with ADHD.  Plenty of information for parents too. 100 plus links to ADHD-related websites.   Includes the National ADHD Directory with over 1100 ADHD Service Providers listed as well as a National ADHD Events Calendar.  Free monthly eNews available.

 

 

F.I.R.M.O. Raffaella Becagli Foundation

Our Association, F.I.R.M.O.- Fondazione Raffaella Becagli Onlus,  is a non-profit Association whose main goal is to support the research in the area of the prevention and treatment of skeletal diseases in Italy. The Association has been recently established in Florence, and it also has recently launched its new website

 

 

Barakat syndrome

Barakat syndrome, also known as HDR syndrome, was first described by Barakat et al in 1977 and is an inherited condition characterized by hypoparathyroidism, sensorineural deafness and renal disease. Patients usually present with hypocalcaemia, tetany, or afebrile convulsions at any age. Hearing loss is usually bilateral and may range from…

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OTHER FOUNDATIONS AND ASSOCIATIONS

 

 

 

C.L.I.M.B. (United Kingdom)

Climb is committed to fighting metabolic diseases through research, awareness and support.  We are the UK's only dedicated organisation to provide advice, information and support on all metabolic diseases to children, young adults, families, carers and professionals. 

   
Hypopara UK

The Official website for HypoPARA UK

 

 

Nordic hypoPARA Organisation

The official website for Nordic hypoPARA Organisation

 

 

Danish Hypopara Association

The officical website for Dansk forening for Hypoparathyreoidisme

   

Swedish Hypopara Association

The official website for Svensk forening for Hypoparatyreoidism

   

Familial Idiopathic Basal Ganglia Calcification

Familial idiopathic basal ganglia calcification (FIBGC) is a neurodegenerative disorder with characteristic calcium deposits in the basal ganglia and other brain areas visualized on neuroimaging.

 

 

Fuller Albright (Pioneer Physician in Hypoparathyroidism)  (Published with permission)

American physician and endocrinologist, born January 12, 1900, Buffalo, New York State; died December 8, 1969, Massachusetts General Hospital, Boston.

 

 

Vitamin D's Connection to Calcium Control (Published with permission)

With rickets    under control, scientists now concentrated on finding out how the miracle bone builder worked.

 

 

USDA Nutrient Database for Standard Reference, (Published with permission)

The USDA Food and Nutrition Information Center has some valuable info.

 

 

InSeNSU (in German)

German Association for Hypoparathyroidism

 

 

 

 

Water Survivors Association

To receive Justice for civilian, military and military dependent peace-keepers that were wounded as a result of toxic chemical poisoning at Camp Lejeune, North Carolina.

 

 

WebWhispers

This web site is maintained for those who have questions about larynx cancer

 

 

Thyroid Association of Australia, Ltd.

Thyroid Australia is a support organization for people with thyroid conditions as well as their families and their friends.

 

 

ThyCa:  Thyroid Cancer Survivors' Association, Inc.

This website has been created and is maintained by thyroid cancer survivors.  Since October 1995, we have been developing a network of services that link thyroid cancer survivors and health care professionals around the world.

 

 

Norwegian Federation of Organizations of Disabled People (FFO): link to web site in Norwegian

Integrering er tema for ett eller flere frimerke som Posten vil gi ut til våren. En designer fra designkontoret abd har fått oppdraget av Posten, og tok derfor kontakt med FFO for å få innspill til hva som er FFOs tanker rundt dette begrepet. I dag møtte designeren et par av FFOs rådgivere for å få inspirasjon til oppgaven. Vi venter spent på

 

 

The Nephron Information Center

Very good information on the Kidneys.  A fantastic page on Phosphorous.  Search for it on the site.

 

 

The American Association of Kidney Patients (AAKP)

A very good resource on the kidneys.  Check out the article: “The Importance of Following a Renal-Friendly Diet”.

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FAVORITE LINKS

Below are some links we feel will be of benefit to you.  We are always interest in new links that would be of interest to our members, or if you find any incomplete links, please let us know so we can either add or delete them as necessary at admin@hpth.org.  Thank you!

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   APE/CECD (APS-1) SYNDROME

  HYPER-PARATHYROIDISM

  HYPOPARATHYROIDISM

  HYPOPARATHYROIDISM – TREATMENT AND MANAGEMENT

  MINERALS

  MISCELLANIOUS INFORMATION

  MOTIVATION

  OTHER FOUNDATIONS AND ASSOCIATIONS

  OTHER MEDICAL DISORDERS

  PARATHYROID GLAND/PARATHYROID HORMONE

  PATIENT INFORMATION

  PATIENT STUDIES

  RESEARCH AND EDUCATIONAL AIDS

  THYROID DISORDERS

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