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Newly Diagnosed?

By now you realize that you have been diagnosed with a very rare disorder – so rare, that you have trouble finding out what it even is or how to deal with it in your day to day life.

An image of a woman sitting on an exam table, smiling at her doctor.

What You Need To Know

HypoPARAthyroidism is a chronic condition with no cure as of yet and even treatments are limited. You will need to work closely with a doctor (preferably one who has experience with this condition) to manage your symptoms and protect your body from any possible long-term effects. It’s important to think of your doctor as part of a team along with yourself, your loved ones and even this association, working together to support and keep you well.

Facts and Information

HypoPARAthyroidism Emergency Card 

 

What is HypoPARAthyroidism Fact Sheet

Helpful Videos

Definition of Hypoparathyroidism

Causes of Hypoparathyroidism

Patients With HypoPARA Share Their Experiences

Laurence actively discussing advice he has to new patients

Advice to the Newly Diagnosed HypoPARA Patient

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John Potts, Endocrinologist, actively discussing symptoms in a sit-down interview.

Common Symptoms of Hypoparathyroidism

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Nancy actively discussing in a sit-down interview

Suggestions for Caregivers of HypoPARA Patients

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Connect With Us

As daunting as it may seem, you are not alone. We have all been where you are now. We live with hypoPARA and are working closely with doctors and professionals to learn everything there is available in terms of treatment and research. Use this website to find the answers to your most pressing questions. Come to our yearly conference to learn more and to network with fellow patients and the many doctors who are making a difference.

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