By now you realize that you have been diagnosed with a very rare disorder – so rare, that you have trouble finding out what it even is or how to deal with it in your day to day life.
What You Need To Know
HypoPARAthyroidism is a chronic condition with no cure as of yet and even treatments are limited. You will need to work closely with a doctor (preferably one who has experience with this condition) to manage your symptoms and protect your body from any possible long-term effects. It’s important to think of your doctor as part of a team along with yourself, your loved ones and even this association, working together to support and keep you well.
Facts and Information
Connect With Us
As daunting as it may seem, you are not alone. We have all been where you are now. We live with hypoPARA and are working closely with doctors and professionals to learn everything there is available in terms of treatment and research. Use this website to find the answers to your most pressing questions. Come to our yearly conference to learn more and to network with fellow patients and the many doctors who are making a difference.