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Together Growing Stronger ~ Together Making A Difference

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Welcome!

The HypoPARAthyroidism Association is a non-profit patient organization working to improve lives touched by hypoparathyroidism, a rare medical disorder in which the parathyroid glands fail to produce sufficient amounts of the parathyroid hormone, a principal regulator of the body's mineral homeostasis. We are directed by an unpaid volunteer Board of Directors and are overseen by a Medical Advisory Board.

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Today, Dana Crumpton Lee passed peacefully surrounded by his family and loved ones after a long battle of colon Cancer.  Dana will always be remembered for his kind heart and soul, always ready to give even up to the end.  Dana has given much to the HypoPARAthyroidism Association, and has been a board member for the last 4 years.  He has been an advocate for HypoPARA, in everything he did. When he was in the hospital, he would use himself as a teaching tool, to help the staff understand about HypoPARA.  His drive to support his family, his HypoPARA family and friends was endless.  He was forever being an advocate for us.  Cinderella said, “be kind and of good cheer” that is a motto that fits Dana.  From this day, let us model ourselves with a Dana mindset, to be kind and of good cheer regardless what is going on around us.  Dana lived with grace and he died with grace. Bless you, Dana Crumpton Lee!

Condolences can be sent to: Ron Lee, 1006 Painted Post Dr, Madison WI 53716

 

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Save the Dates!

 The 12th International Conference on Hypoparathyroidsim

October 18th-19th

 Denver, Colorado

Registration will open after June 1st

Conference Hotel - registration for rooms opening shortly

Doubletree by Hilton Denver
3203 Quebec St
Denver, Colorado 80207

*Free Parking

*Conference rates for hotel will be $119 for single, double, triple; $129 for quad,
if booked by 27 Sep 2019

More Details will be forthcoming 

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PARADOX PAPER

The American Association of Clinical Endocrinologists (AACE) the publisher of Endocrine Practice has generously allowed us to post the paper  "Understanding the Burden of Illness Associated with Hypoparathyroidism Reported Among Patients in the PARADOX Study" on our site.  

They are asking our members to print only one copy for their personal use (eg to help educate their doctor).  This study is one many of our members participated in to help the medical community better understand what it really means to have hypoparathyroidism.  To view the paper for free, you must log in to our site.   Here’s the link:  https://www.hypopara.org/webinars/paradox_results.html

 

 

  

 

 

 

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You should always seek the advice of your physician or other qualified health provider with any questions or concerns you may have regarding your health. Never disregard or delay seeking medical advice relating to treatment or standard of care because of information featured on or transmitted through this Website.
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