HPTH Pic

Together Growing Stronger ~ Together Making A Difference

butterfliesbutterfliesbutterflies

Welcome!

The HypoPARAthyroidism Association is a non-profit patient organization working to improve lives touched by hypoparathyroidism, a rare medical disorder in which the parathyroid glands fail to produce sufficient amounts of the parathyroid hormone, a principal regulator of the body's mineral homeostasis. We are directed by an unpaid volunteer Board of Directors and are overseen by a Medical Advisory Board.

butterfliesbutterfliesbutterflies

Now Open: New study to understand the impact of hypoparathyroidism


Do you feel like your hypoparathyroidism symptoms are uncontrolled by your current treatment?

We have an online questionnaire for caregivers and adults with hypoparathyroidism who:

~  Are receiving calcium or vitamin D supplements as treatment

~  Still experiencing symptoms despite taking calcium or vitamin D supplements

The questionnaire aims to understand how hypoparathyroidism impacts your life and how you cope with it on a daily basis. To see if you qualify, visit http://survey.confirmit.com/wix/3/p3085144663.aspx?&l=1033

Do you have regular help and/or support from a friend or family member?

We would also like to hear from them too. In this survey we refer to this person as a caregiver, but this is a term for any family member or friend who may help you with regular activities, such as medication, grocery shopping, household chores, transportation, for example.  

The results will be used to understand how to treat hypoparathyroidism effectively and may be published in scientific literature. If you would like to take part in this industry-sponsored study, please follow the link. Many thank you in advance for your participation. http://survey.confirmit.com/wix/3/p3085144663.aspx?&l=1033

butterfliesbutterfliesbutterflies

Now recruiting: medication injection device user study

If you are diagnosed with hypoparathyroidism or are a caregiver for someone with hypoparathyroidism, Radius is looking for study participants to evaluate a new injection device in the United States. The purpose of the study is to ensure that the device can be used safely and effectively.  For more information please visit our Clinical Trials page.

butterfliesbutterfliesbutterflies

SAVE THE DATES! 

2018 PATIENT CONFERENCE ON HYPOPARATHYROIDISM

OCTOBER 19 & 20, 2018

CHICAGO, IL

MORE DETAILS WILL BE COMING

butterfliesbutterfliesbutterflies

PARADOX PAPER

The American Association of Clinical Endocrinologists (AACE) the publisher of Endocrine Practice has generously allowed us to post the paper  "Understanding the Burden of Illness Associated with Hypoparathyroidism Reported Among Patients in the PARADOX Study" on our site.  

They are asking our members to print only one copy for their personal use (eg to help educate their doctor).  This study is one many of our members participated in to help the medical community better understand what it really means to have hypoparathyroidism.  To view the paper for free, you must log in to our site.   Here’s the link:  https://www.hypopara.org/webinars/paradox_results.html

butterfliesbutterfliesbutterflies

 

  

 

 

All users are responsible for their own medical care, treatment, and oversight. All of the content provided on this Website, including text, treatments, dosages, outcomes, charts, profiles, graphics, photographs, images, advice, messages, forum postings, are for informational purposes only and are NOT intended to be a substitute for independent professional medical judgment, advice, diagnosis, or treatment.

You should always seek the advice of your physician or other qualified health provider with any questions or concerns you may have regarding your health. Never disregard or delay seeking medical advice relating to treatment or standard of care because of information featured on or transmitted through this Website.

 

Premium SSL Certificate