Together Growing Stronger ~ Together Making A Difference
The HypoPARAthyroidism Association is a non-profit patient organization working to improve lives touched by hypoparathyroidism, a rare medical disorder in which the parathyroid glands fail to produce sufficient amounts of the parathyroid hormone, a principal regulator of the body's mineral homeostasis. We are directed by an unpaid volunteer Board of Directors and are overseen by a Medical Advisory Board.
The 2nd Quarter 2016 issue of the HypoPARA-Post is now available online - FREE to all for a limited time.
The American Association of Clinical Endocrinologists (AACE) the publisher of Endocrine Practice has generously allowed us to post the paper "Understanding the Burden of Illness Associated with Hypoparathyroidism Reported Among Patients in the PARADOX Study" on our site.
They are asking our members to print only one copy for their personal use (eg to help educate their doctor). This study is one many of our members participated in to help the medical community better understand what it really means to have hypoparathyroidism. To view the paper for free, you must log in to our site. Here’s the link: https://www.hypopara.org/webinars/paradox_results.html
This meeting took place May 2015 in Florence, Italy with doctors from all over the world meeting to discuss the creation international guidelines for hypoparathryoidism. [You will need to create a new free account to access the multimedia link for the full proceedings]
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