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Together Growing Stronger ~ Together Making A Difference

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Welcome!

The HypoPARAthyroidism Association is a non-profit patient organization working to improve lives touched by hypoparathyroidism, a rare medical disorder in which the parathyroid glands fail to produce sufficient amounts of the parathyroid hormone, a principal regulator of the body's mineral homeostasis. We are directed by an unpaid volunteer Board of Directors and are overseen by a Medical Advisory Board.

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Attention all caregivers of
hypoparathyroidism patients

You are invited to participate in a Research Study designed to understand life as a caregiver for patients with Hypoparathyroidism*

If you care for, assist, or help someone when they are experiencing symptoms, we encourage you to participate and to share this link with other caregivers to help the world better understand your experience as a caregiver

You must be a resident of the US and at least 18 years of age to be eligible to participate

Click here to
ENTER the SURVEY

This study is sponsored by a leading company dedicated to the development of novel hypoparathyroidism treatments

*Due to regulatory considerations, only caregivers of patients with hypoparathyroidism are invited to participate in the survey at this time.This survey is NOT intended for caregivers of patients with pseudohypoparathyroidism, pseudopseudohypoparathyroidism, hyperthyroidism, or hypothyroidism.

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Walk Around the World for Hypopara Awareness

Start a Walk today - raise awareness and funds!

Share your pictures on our FaceBook page!

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PARADOX PAPER

The American Association of Clinical Endocrinologists (AACE) the publisher of Endocrine Practice has generously allowed us to post the paper  "Understanding the Burden of Illness Associated with Hypoparathyroidism Reported Among Patients in the PARADOX Study" on our site.  

They are asking our members to print only one copy for their personal use (eg to help educate their doctor).  This study is one many of our members participated in to help the medical community better understand what it really means to have hypoparathyroidism.  To view the paper for free, you must log in to our site.   Here’s the link:  https://www.hypopara.org/webinars/paradox_results.html

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All users are responsible for their own medical care, treatment, and oversight. All of the content provided on this Website, including text, treatments, dosages, outcomes, charts, profiles, graphics, photographs, images, advice, messages, forum postings, are for informational purposes only and are NOT intended to be a substitute for independent professional medical judgment, advice, diagnosis, or treatment.

You should always seek the advice of your physician or other qualified health provider with any questions or concerns you may have regarding your health. Never disregard or delay seeking medical advice relating to treatment or standard of care because of information featured on or transmitted through this Website.

 

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