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Together Growing Stronger ~ Together Making A Difference

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Welcome!

The HypoPARAthyroidism Association is a non-profit patient organization working to improve lives touched by hypoparathyroidism, a rare medical disorder in which the parathyroid glands fail to produce sufficient amounts of the parathyroid hormone, a principal regulator of the body's mineral homeostasis. We are directed by an unpaid volunteer Board of Directors and are overseen by a Medical Advisory Board.

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11th International Conference on Hypoparathyroidism

October 19 - 20, 2018

Hilton Chicago/ Oak Lawn 
Oak Lawn, IL 
(located near Midway Int'l Airport)

This conference is for anyone touched by hypoparathyroidism (patients, family, caregivers) who want to learn more and want to meet others in "the same boat". Our conference will cover all forms of hypoparathyroidism from the basics, treatment options, new or ongoing research, etc. The Thyroid Cancer Survivor's Association (ThyCa) is also holding their conference at the same time and place. So we got together and made arrangments for attendees to attend any of the available sessions of either conference for one fee.

Registration: The cost for registration is $40Registration is now open (the link will take you off site to register. Please make sure it says HypoPARAthyroidism Association and not ThyCa). You only need to fill out the one form - the conference fee covers both conferences. We were informed of a glitch when registering multiple people. Until it is fixed, please register each person separately. 

There are a limited number of scholarships available for registration and/or Friday dinner. The deadline is September 15th. To apply, please contact Dana Crumpton at dcrumpton@hypopara.org. You will need to provide a short essay on why you are applying for help.

Sessions: Our conference will take place in our own dedicated meeting rooms. We are still finalizing the speakers and topics plus Q&A discussions; trying to avoid repetition while addressing issues that are timely to our attendees.  As usual, the topics will include ALL forms of hypoparathyroidism. The choice will be yours as to what you prefer to attend.     

We are pleased to annouce that Drs. Michael Mannstadt (Harvard), Kelly Roszko (NIH), Bart Clarke (Mayo Rochester), Michael Levine (Children's Hospital of Philadelphia), Dolores Shoback (UCSF), Dan Ruan (private practice), and Dan Greenhalgh (private dental practice) have confirmed they will speak.

HotelThe Hilton Chicago/Oak Lawn is now full. Please register at the Double Tree by Hilton Chicago-Alsip. Arrangements have been made for the special rate of $119/night plus tax.

Double Tree by Hilton Chicago-Alsip
5000 W 127th St
Alsip, IL 60803
(708)371-7300 

They also have a free shuttle between Midway International Airport and their hotel. The shuttle runs 4 am - 10:59 pm and runs at the top of the hour.

Use this link to reserve a room at the special rate:  http://group.doubletree.com/ThyroidCancerSurvivorsAssocThyCa

The Double-Tree by Hilton Chicago-Alsip hotel is too far to walk to the conference hotel, but arrangements have been made for a shuttle between the hotels at certain times during the day

If you have registered at either hotel and need a fridge for your PTH replacement, please contact Deb Murphy at dmurphy@hypopara.org and let her know. Thanks!

Banquet:  Our HypoPARA banquet and silent auction will be held on Friday, October 19th at 6 pm. The dinner will be $50. You have a choice of Roasted Half Chicken, Chicago Steak, or Vegetable Lasagna. It will be a fun night of being together and sharing with each other. 

Silent AuctionWe would also like to encourage you to participate in the Silent Auction being held Friday, Oct 19th. You do not have to attend the conference to participate.  So get your creative juices working and represent your state at this year’s Silent Auction. Create a gift basket of items that represent you and your state to be auctioned off. It can be homemade items, or anything you would like to put together to be auctioned off to help raise funds for the Association. It has been interesting at past conferences to see what people bring. We have had battle of the maple syrups from several countries and we have had cheese heads from Wisconsin and Potato’s from Idaho. So start thinking now!

Don’t want to travel with your basket or cannot attend? Contact Dana Crumpton at dcrumpton@hypopara.org to make arrangements to ship it to him and he will take it from there.

Box Lunches: will be available for purchase for $13 a day. Your choice of Ham Sandwich, Smoked Turkey Sandwich, Roast Beef Sandwich, Portobello Sandwich (V), Ham Lettuce Wrap (GF), Smoked Turkey Lettuce Wrap (GF), Roast Beef Lettuce Wrap (GF), Portobello Lettuce Wrap (GF, V) or Garden Salad. All lunches include chips and a drink. You will need to plan your meals as none will be provided.

Conference T-Shirt: There will be a conference t-shirt available for pre-order for $20. 

Questions? please feel free to contact Deb Murphy at dmurphy@hypopara.org.

Check back for updates!!

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PARADOX PAPER

The American Association of Clinical Endocrinologists (AACE) the publisher of Endocrine Practice has generously allowed us to post the paper  "Understanding the Burden of Illness Associated with Hypoparathyroidism Reported Among Patients in the PARADOX Study" on our site.  

They are asking our members to print only one copy for their personal use (eg to help educate their doctor).  This study is one many of our members participated in to help the medical community better understand what it really means to have hypoparathyroidism.  To view the paper for free, you must log in to our site.   Here’s the link:  https://www.hypopara.org/webinars/paradox_results.html

 

 

  

 

 

 

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