Together Growing Stronger ~ Together Making A Difference



The HypoPARAthyroidism Association is a non-profit patient organization working to improve lives touched by hypoparathyroidism, a rare medical disorder in which the parathyroid glands fail to produce sufficient amounts of the parathyroid hormone, a principal regulator of the body's mineral homeostasis. We are directed by an unpaid volunteer Board of Directors and are overseen by a Medical Advisory Board.


Now recruiting: medication injection device user study (still have openings!)

If you are diagnosed with hypoparathyroidism or are a caregiver for someone with hypoparathyroidism, Radius is looking for study participants to evaluate a new injection device in the United States. The purpose of the study is to ensure that the device can be used safely and effectively.  

Who are we looking for? 

 Patients and/or Caregivers of those diagnosed with Hypoparathyroidism who have never used an injection device


 Patients and/or Caregivers who currently administer or previously administered NATPARA Q-Cliq Pen on a routine basis at home

You must be between the age of 18 to 65 years old

You must be willing and able to complete all required in-person sessions at one of the facilities listed below

Study Information  

 You will NOT be interacting with any real drug at any point during the study.

You will NOT be injecting the placebo filled pen into yourself or anyone else. All injections will be a simulation and will be completed on an injection pad.

Depending on the enrollment group, you may be required to complete either: ONE 90 minute session OR TWO 60 minute sessions that will take place within 2 weeks of each other.

Study sessions will be held at the following facilities on the corresponding dates:

Orlando – March 6th – 8th AND March 20th – 22nd

Philadelphia - March 13th – 15th AND March 27th – 29th 

Chicago –  March 20TH – 22ND AND April 3th – 4th

All information gathered as part of this study will be kept anonymous. If you meet the study qualifications and are enrolled into this study, then you will be compensated for taking time out of your busy schedule to participate. The amount of compensation will be: $135 for the ONE 90 minute session OR$180 for the TWO 60 minute sessions.

If you are interested in participating in the study, please contact our principal investigator for additional information on enrollment at:

Investigator: Jessica Franklin at Radius Innovation & Development

Email: jessica.franklin@radiusinnovation.com

Phone: +1 312 475 7740 




OCTOBER 19 & 20, 2018





The American Association of Clinical Endocrinologists (AACE) the publisher of Endocrine Practice has generously allowed us to post the paper  "Understanding the Burden of Illness Associated with Hypoparathyroidism Reported Among Patients in the PARADOX Study" on our site.  

They are asking our members to print only one copy for their personal use (eg to help educate their doctor).  This study is one many of our members participated in to help the medical community better understand what it really means to have hypoparathyroidism.  To view the paper for free, you must log in to our site.   Here’s the link:  https://www.hypopara.org/webinars/paradox_results.html




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