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There is still time to register for the Patient Workshop on Hypoparathyroidism in Buffalo!
Saturday, May 13, 2017Courtyard Buffalo Airport
10 a.m. to 2 p.m.Cheektowaga, NY (Buffalo area)
Check the Conference Info page for more info and to register.
Welcome!
The HypoPARAthyroidism Association is a non-profit patient organization working to improve lives touched by hypoparathyroidism, a rare medical disorder in which the parathyroid glands fail to produce sufficient amounts of the parathyroid hormone, a principal regulator of the body's mineral homeostasis. We are directed by an unpaid volunteer Board of Directors and are overseen by a Medical Advisory Board.
The 2017 Hypopara Awareness Day T-Shirt is now available to order. You can choose from two colors, Indigo Blue or Mint Green.
You must order by May 12th so we can get your shirt made and delivered to you before June 1st.
Check them out at https://www.customink.com/g/sbm0-00az-s6ds
The 2nd Quarter 2016 issue of the HypoPARA-Post is now available online - FREE to all for a limited time.
PARADOX PAPER
The American Association of Clinical Endocrinologists (AACE) the publisher of Endocrine Practice has generously allowed us to post the paper "Understanding the Burden of Illness Associated with Hypoparathyroidism Reported Among Patients in the PARADOX Study" on our site.
They are asking our members to print only one copy for their personal use (eg to help educate their doctor). This study is one many of our members participated in to help the medical community better understand what it really means to have hypoparathyroidism. To view the paper for free, you must log in to our site. Here’s the link: https://www.hypopara.org/webinars/paradox_results.html
1st International Conference on the Diagnosis, Management and Treatment of Hypoparathyroidism
This meeting took place May 2015 in Florence, Italy with doctors from all over the world meeting to discuss the creation international guidelines for hypoparathryoidism. [You will need to create a new free account to access the multimedia link for the full proceedings]
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