Improving the Lives of People Impacted by HypoPARA
HypoPARAthyroidism is a
challenge we face together.
You are not alone!
What is HypoPARAthyroidism?
HypoPARAthyroidism is a rare endocrine disorder that is characterized by low calcium levels and low or absent parathyroid hormone (PTH). This condition may result from neck surgery. It can also be inherited and/or be associated with other disorders.
Our Mission
We are a non-profit patient association working to improve the lives of people impacted by hypoPARAthyroidism through education, support, research, and advocacy. We are here to raise awareness of hypoPARAthyroidism and to bring change to the lives of those affected. With your help we can make a difference.
Patient Stories
One of the most exciting things in my most recent research is finding your organization. Literally seeing a bunch of people on video who had hypoPARA. Coming from a place where I thought I was the only one, this was heartwarming and inspirational to me.
Living with HypoPARA: A Video Story
300 million people worldwide are currently living with a rare disease. Learn what it’s like to live with hypoPARA.
Important Stats
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262 thousand people worldwide have hypoPARA.
0%+
Over 60% of hypoPARA patients are post-surgical.
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75% of people with hypoPARA are female.
Join the HypoPARAthyroidism Association
Membership is free! Sign up now and join us as we learn together how to best live and cope with hypoPARAthyroidism.
