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Welcome!
The HypoPARAthyroidism Association is a non-profit patient organization working to improve lives touched by hypoparathyroidism, a rare medical disorder in which the parathyroid glands fail to produce sufficient amounts of the parathyroid hormone, a principal regulator of the body's mineral homeostasis. We are directed by an unpaid volunteer Board of Directors and are overseen by a Medical Advisory Board.
11th International Conference on Hypoparathyroidism
October 19 - 20, 2018
Hilton Chicago/ Oak Lawn Oak Lawn, IL (located near Midway Int'l Airport)We are holding the 11th International Conference on Hypoparathyroidism at the same time and location as the Thyroid Cancer Survivors Association’s (ThyCa) annual conference allowing you the opportunity to attend both conferences at the same time. Our conference will still cover all forms of hypoparathyroidism from the basics, treatment options, new or ongoing research, etc.
Registration: Since we are holding our conferences at the same time, we have made arrangements for our attendees to register for both conferences with one registration. The cost for registration is $40. Registration is now open (the link will take you off site to register). There are a limited number of scholarships available for registration and/or Friday dinner. To apply, please contact Dana Crumpton at dcrumpton@hypopara.org (you will need to provide a short essay on why you are applying for help).
Please make sure you are using the HypoPARAthyroidism Association form - you only need to fill out the one form - the conference fee covers both conferences.
There is a glitch we were informed of - if you want to register multiple people you will be taken to the Thyca form. We working to fix this in the meantime register each person separately.
Sessions: Our conference will take place in our own dedicated meeting rooms. We are still finalizing the speakers and topics plus Q&A discussions; trying to avoid repetition while addressing issues that are timely to our attendees. As usual, the topics will include ALL forms of hypoparathyroidism. The choice will be yours as to what you prefer to attend.
We are pleased to annouce that Drs. Michael Mannstadt (Harvard), Kelly Roszko (NIH), Bart Clarke (Mayo Rochester), Michael Levine (Children's Hospital of Philadelphia), Dolores Shoback (UCSF), Dan Ruan (private practice), and Dan Greenhalgh (private dental practice) have confirmed they will speak.
Hotel: The Hilton Chicago/Oak Lawn is now full. Please register at the Double Tree by Hilton Chicago-Alsip. Arrangements have been made for the special rate of $119/night plus tax.
Double Tree by Hilton Chicago-Alsip5000 W 127th St
Alsip, IL 60803(708)371-7300
They also have a free shuttle between Midway International Airport and their hotel. The shuttle runs 4 am - 10:59 pm and runs at the top of the hour.
Use this link to reserve a room at the special rate: http://group.doubletree.com/ThyroidCancerSurvivorsAssocThyCa
The Double-Tree by Hilton Chicago-Alsip hotel is too far to walk to the conference hotel, but arrangements have been made for a shuttle between the hotels at certain times during the day.
If you have registered at either hotel and need a fridge for your PTH replacement, please contact Deb Murphy at dmurphy@hypopara.org and let her know. Thanks!
Banquet: Our HypoPARA banquet and silent auction will be held on Friday, October 19th at 6 pm. The dinner will be $50. You have a choice of Roasted Half Chicken, Chicago Steak, or Vegetable Lasagna. It will be a fun night of being together and sharing with each other.
Box Lunches: will be available for purchase for $13 a day. Your choice of Ham Sandwich, Smoked Turkey Sandwich, Roast Beef Sandwich, Portobello Sandwich (V), Ham Lettuce Wrap (GF), Smoked Turkey Lettuce Wrap (GF), Roast Beef Lettuce Wrap (GF), Portobello Lettuce Wrap (GF, V) or Garden Salad. All lunches include chips and a drink. You will need to plan your meals as none will be provided.
Conference T-Shirt: There will be a conference t-shirt available for pre-order for $20.
THINGS TO DO RIGHT NOW:
Save your money!!!!
Register for the conference
Book Your Hotel Room
Gather Silent Auction donation(s)
Check back for updates!!
PARADOX PAPER
The American Association of Clinical Endocrinologists (AACE) the publisher of Endocrine Practice has generously allowed us to post the paper "Understanding the Burden of Illness Associated with Hypoparathyroidism Reported Among Patients in the PARADOX Study" on our site.
They are asking our members to print only one copy for their personal use (eg to help educate their doctor). This study is one many of our members participated in to help the medical community better understand what it really means to have hypoparathyroidism. To view the paper for free, you must log in to our site. Here’s the link: https://www.hypopara.org/webinars/paradox_results.html
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