Patient Stories
Hear from Real People
Share your experience with hypoPARA. We want to hear all about it - the good, the bad, how it all happened and what your life is like today. You can also browse our collection of stories from other hypoPARAthyroidism warriors.
Our Featured Stories
”FINDING A TRIBE-In April 2020, exactly two years after my diagnosis, I launched Hypopara Warrior- a small, humble corner of the internet dedicated to sharing my journey and reaching out to others walking the same path. I had no expectations. I simmply wanted to be seen and to make others feel seen. What I didn't anticipate was how quickly and deeply I would connect with others. Suddenly, I wasn't alone.”
READ REETI'S STORY
"I was born without parathyroid glands, the four small glands located behind the thyroid. I was diagnosed with HypoPARA at about 10 weeks old after I stopped breathing at 8 weeks old. According to my medical records, I stopped breathing 4–5 times the same night I was hospitalized. My body was not actively making calcium or active vitamin D. It took two weeks before I officially received the diagnosis of HypoPARA.."
-Bridgett, Non-Surgical
See All Our Patient Stories
Share Your Story
We are in this together! If you'd like to share your story please fill out the form below and we will post it here. Don’t forget to include a photo of yourself!
We use patient stories in many ways – when we need to look for specific patients for a research study or to speak to the FDA, for our Warrior Wednesday posts, and we also just like to offer patients an outlet to share with others who understand their journey.
Know that we won't sell your story or reuse anywhere other than our webpage and social media account without your express permission.