Privacy Policy

Last updated: July 29, 2026

HypoPARAthyroidism Association, Inc. (“HypoPARA,” “we,” “us,” or “our”) respects your privacy. This Privacy Policy explains what information we collect when you visit hypopara.org (the “website”), how we use and share that information, and the choices available to you.

For purposes of this Privacy Policy, “personal information” means information that identifies you or could reasonably be linked to you.

HypoPARA is based in Frisco, Texas, United States.

Information We Collect

Information You Provide

We may collect information that you voluntarily provide when you:

• Contact us or submit a website form
• Join the HypoPARA community
• Subscribe to email communications
• Register for an event or program
• Make a donation
• Volunteer or participate in an Association activity
• Submit a patient story, recommendation, comment, testimonial, or other content

Depending on the form or activity, this information may include your name, email address, mailing address, telephone number, country, communication preferences, relationship to the hypopara community, and any other information you choose to provide.

Information you include in a patient story, message, or other submission may contain health-related or other sensitive information. Please provide only the information you are comfortable sharing and that is necessary for the applicable form or program.

If you submit information for publication, such as a patient story or testimonial, the information you approve for publication may become publicly available.

Information Collected Automatically

When you use our website, we and our service providers may automatically collect information such as:

• Your Internet Protocol address
• Browser, device, and operating system information
• Approximate location
• Referring website, advertisement, or campaign
• Pages viewed and links selected
• Dates, times, and duration of visits
• Interactions with forms, videos, podcasts, emails, and other content

We may collect this information through cookies, pixels, tags, web beacons, browser storage, and similar technologies.

How We Use Information

We may use the information we collect to:

• Operate, maintain, secure, and improve our website
• Respond to questions, requests, and form submissions
• Manage memberships, registrations, donations, and program participation
• Send newsletters, event information, announcements, and other requested communications
• Provide information and resources to patients, caregivers, healthcare professionals, researchers, and other members of the hypopara community
• Understand how visitors use our website and content
• Measure the effectiveness of our outreach, communications, and advertising
• Protect against fraud, spam, automated attacks, misuse, and security threats
• Comply with applicable legal and regulatory obligations
• Protect our rights and the rights, safety, and property of others

Cookies and Similar Technologies

What Are Cookies?

Cookies are small files placed on your browser or device. They help websites operate, remember preferences, understand visitor activity, and measure the effectiveness of communications and advertising.

We may also use pixels, tags, web beacons, local storage, session storage, and similar technologies. In this Privacy Policy, we refer to these tools collectively as “cookies and similar technologies.”

How We Use Cookies

We use cookies and similar technologies to:

• Provide essential website functionality
• Remember your cookie-consent preferences
• Support website forms and preserve campaign information
• Understand how visitors use the website
• Measure advertising and outreach performance
• Display embedded video and podcast content

You can review or change your cookie preferences using the Change Consent Settings links below. You may also manage cookies through your browser settings. Blocking certain technologies may affect how some website features work.

Analytics, Advertising, and Embedded Content

We use Google Analytics 4, or GA4, to understand how visitors use our website. GA4 may collect information about website sessions, page views, approximate location, browser and device characteristics, and interactions with website content.

We may use the Meta Pixel to measure website visits and actions associated with advertising on Facebook and Instagram, evaluate campaign performance, and support audience measurement. Meta may receive information about visitors’ browsers, devices, referring information, pages visited, and website interactions.

Some pages may contain videos embedded from YouTube and podcast audio files hosted by Podbean. When this content loads or you interact with it, these providers may receive information about your browser, device, IP address, referring page, playback activity, and interactions with the content.

The cookies and technologies associated with these services may vary based on the service provider’s current practices, your browser settings, your consent selections, and how the content is embedded.

The following table provides information about the cookies and similar technologies used on our website:

Change Consent Settings

Local Storage and Session Storage

Our website may use local storage and session storage to support website functionality and remember certain information while you use the website.

• Local storage may retain information in your browser after you close the website.
• Session storage temporarily retains information while your browser session remains active.

The following table provides information about the local and session storage used on our website:

Change Consent Settings

Email Communications

We use Firespring Email Marketing, which operates through the Emma email marketing platform, to manage email subscriptions and send newsletters, event information, Association updates, and other communications.

When you subscribe, we may collect information such as your name, email address, communication preferences, and the date and source of your subscription.

Our email platform may also collect information about email delivery, opens, link clicks, unsubscribes, and other interactions. We use this information to manage our email program and understand and improve the effectiveness of our communications.

You can unsubscribe or update your preferences at any time using the links included in our emails. We may still send nonmarketing communications when necessary, such as responses to requests, registration information, or other service-related messages.

Website Security and Content Delivery

We may use Cloudflare and other service providers to securely deliver website content, support website performance, and protect forms and the website from automated attacks, fraud, and other security threats.

These providers may process technical information such as your IP address, browser and device characteristics, request information, and security signals to provide their services.

Our website uses Cloudflare Turnstile or another automated security tool to determine whether form activity is being performed by a person or an automated system. These tools may evaluate browser, device, network, and interaction signals to prevent spam and abuse.

How We Share Information

We may disclose information to service providers that perform services on our behalf, including providers of:

• Website hosting, security, and content delivery
• Analytics and advertising measurement
• Email marketing
• Video and podcast hosting
• Event registration and program administration
• Donation and payment processing
• Data storage and technical support
• Professional, legal, accounting, or consulting services

These providers may process information as necessary to perform services for us and according to their agreements and privacy practices.

We may also disclose information:

• When required by law, regulation, legal process, or a valid government request
• To investigate or prevent fraud, misuse, security threats, or unlawful activity
• To protect our rights, property, programs, or operations
• To protect the rights, safety, or property of website visitors or others
• In connection with an organizational restructuring, transfer, or similar transaction
• With your consent or at your direction

Depending on applicable law, certain disclosures to advertising or analytics providers may be considered sharing for targeted-advertising purposes.

Third-Party Forms, Donations, and Services

Some website features may direct you to forms, donation platforms, event services, research programs, or other websites operated by third parties.

Information you provide directly to a third party is governed by that party’s privacy policy and terms. We encourage you to review those policies before submitting personal information.

Data Retention

We retain personal information for as long as reasonably necessary to fulfill the purposes described in this Privacy Policy, administer our programs and communications, comply with legal obligations, resolve disputes, and protect or enforce our rights.

The length of time information is retained may depend on the type of information, why it was collected, applicable legal requirements, and whether you request its deletion.

Data Security

We use reasonable administrative, technical, and organizational safeguards designed to protect personal information against loss, misuse, unauthorized access, disclosure, alteration, and destruction.

However, no website, electronic transmission, or storage system can be guaranteed to be completely secure. You should use caution when submitting information online, particularly sensitive personal or health-related information.

Your Privacy Choices and Rights

Depending on where you live and subject to applicable law, you may have the right to:

• Request access to personal information we maintain about you
• Request correction of inaccurate information
• Request deletion of certain information
• Object to or restrict certain uses of your information
• Withdraw consent where processing is based on consent
• Opt out of certain targeted advertising or sharing activities
• Receive a copy of certain information in a portable format

You may also:

• Change your cookie preferences using the consent-setting links on this page
• Block or delete cookies through your browser
• Unsubscribe from email communications
• Adjust advertising preferences through Meta, Google, your browser, or your device

To submit a privacy request, contact us using the information provided below. We may need to verify your identity before completing a request. Some requests may be limited or denied when permitted by law.

Children’s Privacy

Our website is not directed to children under 13, and we do not knowingly collect personal information from children under 13.

If you believe a child under 13 has provided us with personal information, please contact us so that we can take appropriate steps to review and delete the information.

Links to Other Websites

Our website may contain links to websites and services operated by other organizations. We do not control and are not responsible for the content, security, or privacy practices of third-party websites or services.

We encourage you to review the privacy policy of each third-party website you visit.

International Visitors

HypoPARA is based in Texas, United States. We and our service providers may process and store information in the United States and other countries.

If you access the website from outside the United States, your information may be transferred to a country whose privacy and data-protection laws differ from those in your location.

Changes to This Privacy Policy

We may update this Privacy Policy periodically to reflect changes in our website, technologies, programs, service providers, or legal obligations.

When we update the policy, we will post the revised version on this page and change the “Last updated” date. Material changes may also be communicated through a website notice, email, or another appropriate method.

Contact Us

If you have questions about this Privacy Policy or would like to submit a privacy request, contact us at:

HypoPARAthyroidism Association, Inc.
1650 Double Falls Dr.
Frisco, TX 75036
United States

Email: [email protected]