HypoPARAthyroidism Survey
October 31, 2023
Be the Change: Take the HPA’s latest survey
The HypoPARAthyroidism Association is looking to better understand your hypoparathyroidism journey! Support our “Be The Change” initiative by sharing your invaluable insights in our latest survey.
Several years ago, the HPA’s Voices of HypoPARA survey revealed that many patients still struggle to receive adequate medical care for their condition.
Insights from the survey told us that:
• Current standard of care is insufficient and risky
• Many health care professionals may not be aware of the disease signs and symptoms
• Managing calcium levels remains a key challenge
• Serious symptoms or complications may require emergency care, but emergency room staff often don’t recognize the disease
Since then, we’ve leveraged those results to inform and educate physicians, pharma companies, and government officials about the needs of our community.
But as we all know, change is still needed in the hypoparathyroidism space, so we are asking you to take the new version of our survey so we can further understand your experience.
In only 15-20 minutes, you can #BeTheChange.
The survey consists of questions that focus on evaluating patients’ experiences, including diagnosis, treatment, quality of care, and impact on daily living.
Completion of this survey is voluntary and anonymous. Your voice matters. Take the survey here!
We thank you in advance for your insights!