Important Links & Downloads
Resources and Downloadable Content
Below are some links we feel may be of benefit to you. New resources on hypoPARAthyroidism are emerging all the time so if you run across any, let us know at [email protected].
Please Note: These links are not endorsements and we are not responsible for the content of their sites.
Current News on HypoPARAthyroidism - This website keeps track of the most recent news and information on hypoPARAthyroidism.
Endocrine Society - A list of articles on hypoPARAthyroidism from Endocrine Society.
Mayo Clinic - The Mayo Clinic's page on hypoPARAthyroidism.
PubMed.gov (site for US National Library of Medicine; NIH) - A list of articles written on hypoPARAthyroidism, many written by members of our medical advisory board.
Dr. Norman's page discussing hypoPARAthyroidism - This is a commercial site by and for a particular physician's service. This link is not an endorsement.
HypoPARAexchange - Podcasts about hypoPARAthyroidism.
How the Body Works : The 4 Parathyroid Glands - YouTube animation about how the parathyroid glands work.
Pseudo- and Pseudo-pseudohypoPARAthyroidism Medical Pamphlet - A breakdown of the different types of pseudohypoPARAthyroidism as well as information on treatment and monitoring.
HypoPARAthyroidism Terms - A list of terms and definitions relating to hypoPARAthyroidism and symptoms.
Autosomal Dominant Hypocalcemia Types 1 & 2 (ADH1 & 2) - A journal article explaining this genetic form of hypoPARAthyroidism
HypoPARA Symptoms, Treatment & Monitoring pamphlet
Calcilytix Genetic Testing Program - Information on a hypoPARAthyroidism sponsored testing program.
Another perspective analysis on the Paradox Study - This is another article reporting on the Paradox Study conducted on hypoPARAthyroidism patients.
Rx List: The Internet Drug Index - Get information on the medicines you are taking (ie calcitriol, rocatrol, etc.)
Proton-Pump Inhibitors and Hypomagnesemic HypoPARAthyroidism - Article connecting the prolonged use of proton-pumps with possible hypoPARAthyroidism.
Vitamin D - An article from Council for Responsible Nutrition, explaining the need for Vitamin D.
Got Milk? A New Theory on the Relationship Between Calcium and PMS - A peer reviewed article by Nancy Fu, published with permission.
Factors that Inhibit Calcium Absorption - An article by Ron Hoggan and Don Wiss, published with permission.
Magnesium: A Key to Calcium Absorption - An article by Dr. Nan Kathryn Fuchs, Ph.D. from the Magnesium Online Library.
All About Phosphorus - An article on phosphorus from the Linus Pauling Institute Micronutrient Information Center. The Linus Pauling Institute has pages discussing all the body's minerals as well.
Parathyroid UK - Formerly HypoPARA UK, Parathyroid UK is a national voluntary organization endorsed by the British Medical Association, British Thyroid Association , The British Association of Endocrine and Thyroid Surgeons, the Society for Endocrinology and the European Society of Endocrinology. We are proud founders of World HypoPARA Day and the HypoPARA Europe Network and members of Genetic Alliance UK, Rare Disease UK & National Voices.
Netzwerk HypoPARA (in German) - German Network HypoPARA.
Hypoparathyroïdisme France - HypoPARAthyroidism Association France.
ThyCa: Thyroid Cancer Survivors' Association, Inc. - This website has been created and is maintained by thyroid cancer survivors. Since October 1995, we have been developing a network of services that link thyroid cancer survivors and health care professionals around the world.
APS1 Foundation (AutoImmune Polyglandular Syndrome Type 1) - Patients with this disorder also have hypoPARAthyroidism.
NORD (National Organization for Rare Disorders) - We are Platinum members. This site has resources for patient assistance programs, financial assistance, advocacy and more.
Global Genes - We are members of this organization. They are partners with Rare-X. Their website has a lot of genetic information for rare genetic diseases. They also have information about patient advocacy, clinical trials, and podcasts.
Patients Rising - A patient advocacy website that offers resources such as how to make your insurance work for you. They also offer podcasts and classes you can take to learn more.
Aimed Alliance – Know your rights when it comes to insurance, copays, and more. The vision of Aimed Alliance is a society in which consumers, in consultation with their health care providers and loved ones, can make informed and individually appropriate decisions about their health care, and those decisions are not overridden by third parties.
Patient Advocate Foundation – We offer co-pay relief programs, SSI and SSDI help, rides to treatments and so much more.
Social Security Ruling, SSR 14-3p; Titles II and XVI: Evaluating Endocrine Disorders Other than Diabetes Mellitus (effective June 2, 2014) - New Law for Evaluating Endocrine Disorders; It went into effect 6/2/2014. It may be helpful to the patients with hypoPARAthyroidism. It seems to provide more information on hypoPARAthyroidism and other endocrine disorders for social security disability purposes.
Association of Administrative Law Judges - 25th Annual National Education Conference
About New Social Security Disability Law Course Offered and the Instructor
Tulane University Paralegal Studies (PARA-5500-01) Social Security Disability Law
A Primer on Social Security Disability Law (published Fall 2016 Loyola Law Review - Vol 62, No 3)
Physician Locator by A.A.C.E. - This is a physician locator service provided by the American Association of Clinical Endocrinologists, A.A.C.E. They do list Parathyroid disorders as a specialty.
Other Helpful Tips
